Racheal, I left another comment after your last one, but since you don't seem to have a blog here and haven't left a blog URL, I thought I'd post here on my main page too with hopes you'll see this my friend:
Hi Rachael,
Ah, now I know what you speak of. You were speaking of our bureavement group. There was one couple who lost their baby as we did. He was 30 weeks. 10 weeks shy of delivery. She was at a hotel and gave birth all of a sudden. Her experience was like mine and while WE had closure (bacterial vaginosis...which now we know is because bacteria got into the cervix due to the mucus plug) the other couple had no closure because there were no answers from the placenta testing. She asked if we had any answers with hope that THEY too may find them.
The couple your referring to is a whole different couple. They both carried a gene that caused their child to have several birth defects. He couldn't live with how severe they were and thus, he passed. Leaving them sad, frustrated, but now with closure that they should no longer ttc with the genetic disorder.
We don't have that genetic disorder. as the last couple.....our story is similar to the first couple who just seemed to dialate too early. Though mine is something due to the mucus plug which in most cases stays in.
Some wise words for you dear friend...With a new pregnancy, you could drive yourself to tears with all the things that "could" happen. The books that not only show you each trimester, but give you worst case scenareo's, testing for birth defects, etc.
I will tell you with my experience that it's something you shouldn't get too focused on or you will not find JOY in your pregnancy.
I had JOY in my pregnancy. I felt AWESOME in fact. Better than I had in years.
My situation CAN happen, but it's not all too common. In most cases, when a mucus plug sheds, if a person is LISTENED to as the nurse said above, you can still keep the baby from bacteria by what's called a cerclage...or tie the cervix and bedrest.
As far as birth defects. I denied every testing, because we would keep the baby anyways. When we had a second thought about testing jackson with the "bloodtest only and sonogram" for birth defects, none took. We decided that was Gods way of confirming exactly how WE felt. So we didn't pursue.
But please know that you'll scare yourself and take away from the JOY in pregnancy if you look too much into the negatives. LISTEN to your body and when something doesn't feel right, follow through.
Thats what my message is about.
Much love to you dear friend and may you have a healthy and JOYFUL pregnancy in Jesus name. AMEN
Showing posts with label FAQ to me. Show all posts
Showing posts with label FAQ to me. Show all posts
Friday, January 15, 2010
Thursday, January 14, 2010
BV, Genetic Disorder, or something else?! Answer to a question
Another blogger has asked me a question that I thought I'd answer.
In the beginning, after I gave birth to our son Jackson Jeffrey, we were given a couple reasons for the end result. After testing the placenta however, the final result was "bacterial Vaginosis" which I was told was a FREAK thing and wouldn't happen with every pregnancy. That's given we'd actually get pregnant again, but that's a whole other story.
I don't think I ever said it was a genetic disorder, though I was concerned that Polycystic Ovarian Syndrome (PCOS) or side affects from it like Type II diabetes and/or the hypothyroid caused our sons death. I blamed myself because of these issues for quite awhile. The following new results are bitter-sweet. We've found some answers and are finding some sort of closure.
After going home, researching what we were told and then knowing that our sons apgar score was actually EXCELLENT for his gestation. Things weren't adding up.
SO ((SIGH)), after hearing our concern, a woman I met at a womens outing mentioned her OB who has done in-depth studies and it might be to our advantage to just talk with him.
After SEVERAL hours in his office, looking over hospital records, medical records leading up to his birth, listening to the events that took place, we found quite a few things. He started talking (the new OB) and one thing after another started making sense vs. what we were told by the origional Dr's.
Here is what took place:
Outing with someone who was impatient and decided several times in a road rage to SLAM on the breaks. An hour later, I lost my mucus plug. I suspected it could be that, but there was no blood. Made an appointment with whom we were told was THE ONLY high risk center in 7 counties for our area (because I've got diabetes, not because it was an issue, but to be monitored). NEVER saw any of the perinatal Dr.'s. In fact, only saw the nurse practitioner who instead of LISTENING to me, decided to go by the songrom from the day before the incident where we were told cervix was fine and nothing was wrong.
Even after several appointments, the nurse practitioner STILL ignoring my plea. Had she and the Dr.s actually done their job, they'd have found a shed mucus plug, would have been able to insert an antibacterial type suppository and cerclaged the cervix.
Our new OB has let us know that Bacterial Vaginosis is an excuse to throw out when they cannot explain why bacteria has found its way into the amniotic sac and placenta. In which case, had they looked and known, the mucus plug is there to keep bacteria out. When shed, it allows bacteria into the vaginal area which causes inflammation and in the end, caused the amniotic sac to bulge through before Jackson was actually ready. Thus pushing him out before he was ready.
So all this to say it wasn't a genetic disorder. If it were Diabetes or hypothyroid, we were told by several different OB's, that I would have miscarried in the first trimester and I was in the second.
It WAS bacteria in the vaginal area. But it was caused by something. There was no more plug left, which allowed bacteria up to the placenta and amniotic sac where it wasn't corrected. THUS causing the death of our son.
Now I know there will be MANY wondering why we aren't suing. Fact is, it would cost FAR more than we could afford, is too hard to prove, and honestly isn't what we feel God would want.
Instead, I'm using this time to grieve and will use this tragedy to make an impact in the lives of OTHER parents so they will NEVER have to go through this again.
Suing won't bring Jackson back, Education and Awareness will at least impact lives and HIS life and legacy will live on FAR beyond those beautiful 25 minutes we had with him.
I share all this information with hopes to answer questions for those who wonder and to inform women to TRUST their intuition when things don't seem to be adding up and when they feel something is wrong and they aren't being listened to.
Take time to KNOW your body, don't be afraid to FIRE nurses and asking for another one, get rid of your Dr.'s if they aren't listening to you and if like me, your told they are the ONLY ones in the area.....choose LIFE and be willing to travel so you may get better care. Speak UP to CEO's, speak up to Dr.'s whose office staff are rude and know that THEY work for YOU. If you aren't being listened to, odds are, you won't get the best personal care and bedside manner. NOTHING is worth risking your health or in our case, the health of our babys.
So I hope this answers the questions that have been lurking out there for me. I wouldn't ordinarily be throwing this information out, but this is SERIOUS information that could possibly help someone in the future. So I open my heart, our experience and our lives so that someone else may find answers BEFORE something like this happens.
Thank You for asking!
In the beginning, after I gave birth to our son Jackson Jeffrey, we were given a couple reasons for the end result. After testing the placenta however, the final result was "bacterial Vaginosis" which I was told was a FREAK thing and wouldn't happen with every pregnancy. That's given we'd actually get pregnant again, but that's a whole other story.
I don't think I ever said it was a genetic disorder, though I was concerned that Polycystic Ovarian Syndrome (PCOS) or side affects from it like Type II diabetes and/or the hypothyroid caused our sons death. I blamed myself because of these issues for quite awhile. The following new results are bitter-sweet. We've found some answers and are finding some sort of closure.
After going home, researching what we were told and then knowing that our sons apgar score was actually EXCELLENT for his gestation. Things weren't adding up.
SO ((SIGH)), after hearing our concern, a woman I met at a womens outing mentioned her OB who has done in-depth studies and it might be to our advantage to just talk with him.
After SEVERAL hours in his office, looking over hospital records, medical records leading up to his birth, listening to the events that took place, we found quite a few things. He started talking (the new OB) and one thing after another started making sense vs. what we were told by the origional Dr's.
Here is what took place:
Outing with someone who was impatient and decided several times in a road rage to SLAM on the breaks. An hour later, I lost my mucus plug. I suspected it could be that, but there was no blood. Made an appointment with whom we were told was THE ONLY high risk center in 7 counties for our area (because I've got diabetes, not because it was an issue, but to be monitored). NEVER saw any of the perinatal Dr.'s. In fact, only saw the nurse practitioner who instead of LISTENING to me, decided to go by the songrom from the day before the incident where we were told cervix was fine and nothing was wrong.
Even after several appointments, the nurse practitioner STILL ignoring my plea. Had she and the Dr.s actually done their job, they'd have found a shed mucus plug, would have been able to insert an antibacterial type suppository and cerclaged the cervix.
Our new OB has let us know that Bacterial Vaginosis is an excuse to throw out when they cannot explain why bacteria has found its way into the amniotic sac and placenta. In which case, had they looked and known, the mucus plug is there to keep bacteria out. When shed, it allows bacteria into the vaginal area which causes inflammation and in the end, caused the amniotic sac to bulge through before Jackson was actually ready. Thus pushing him out before he was ready.
So all this to say it wasn't a genetic disorder. If it were Diabetes or hypothyroid, we were told by several different OB's, that I would have miscarried in the first trimester and I was in the second.
It WAS bacteria in the vaginal area. But it was caused by something. There was no more plug left, which allowed bacteria up to the placenta and amniotic sac where it wasn't corrected. THUS causing the death of our son.
Now I know there will be MANY wondering why we aren't suing. Fact is, it would cost FAR more than we could afford, is too hard to prove, and honestly isn't what we feel God would want.
Instead, I'm using this time to grieve and will use this tragedy to make an impact in the lives of OTHER parents so they will NEVER have to go through this again.
Suing won't bring Jackson back, Education and Awareness will at least impact lives and HIS life and legacy will live on FAR beyond those beautiful 25 minutes we had with him.
I share all this information with hopes to answer questions for those who wonder and to inform women to TRUST their intuition when things don't seem to be adding up and when they feel something is wrong and they aren't being listened to.
Take time to KNOW your body, don't be afraid to FIRE nurses and asking for another one, get rid of your Dr.'s if they aren't listening to you and if like me, your told they are the ONLY ones in the area.....choose LIFE and be willing to travel so you may get better care. Speak UP to CEO's, speak up to Dr.'s whose office staff are rude and know that THEY work for YOU. If you aren't being listened to, odds are, you won't get the best personal care and bedside manner. NOTHING is worth risking your health or in our case, the health of our babys.
So I hope this answers the questions that have been lurking out there for me. I wouldn't ordinarily be throwing this information out, but this is SERIOUS information that could possibly help someone in the future. So I open my heart, our experience and our lives so that someone else may find answers BEFORE something like this happens.
Thank You for asking!
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