So today, on what would have been Jackson Jeffrey's due date, I finally got a call from Crouse Hospital.
It seems that there was miscommunication between a couple of people and I was missed. I sat for just about an hour chatting with the Director Of Guest Services about things that needed to be changed concerning bureaving parents. I let her know I wanted to help and would volunteer in any way.
I was floored when she mentioned our experience moved her in such a way that she wanted to make sure no other parent had to go through some of the things we went through. I now have an appointment with not only the Director Of Guest Services, but will be presenting our experience to The director of Chief Quality, The Director of Nursing, The Director of Billing, And a couple more I cannot remember.
I just about fainted! I didn't think I'd get past customer service...but my story has already begun to bring faces and names to those in positions to make a CHANGE. This has been my hope since the death of our son. That NO OTHER bereaving parent would have to go through what we have. To change policies, bring communication and bring some compassion to a tragic event.
Believe it or not, having spoken with other bureaving famlies, our local Syracuse hospitals, while they need work in certain areas, have MUCH more than many smaller hospitals. I've met a dear family who because the hospital wasn't equipped with neonatal care nor any labor and delivery units or Dr.'s, she and her husband were thrown in a utility closet to deliver preterm. They had no camera's for pictures of their little baby, no blankets, no little hats, no fetal monitors, no way to tell when her childs heartbeat stopped.
This shouldn't happen in our hospitals here in America! I know there are funding issues, but even this family took it upon themselves to create boxes filled with paper, ink for the infants feet, a box for the bureaving families as well as information for each hospital. 21 hospitals in her state of New Jersey.
I would like to take this Nationally to be sure no bureaving parent has to go through anymore than they must. Right now I'm starting slow....and over time I have many ideas to honor our son's memory by helping others. But never did I expect that we would be meeting with so many Directors in the same room. To actually be a part of REAL CHANGE so that no other family endures what we have.
It's a step in the right direction when a hospital cares about the quality of their care enough to meet and work together to create real change for their patients. Especially the little ones who we advocate for.
I did fine until I hung up. Tears fell as I whiped them away and prayed that little ol' me and my dear husband could make an impact on someone's life. I'm really not anybody special. I just don't want to leave this world having never helped to impact anothers life or bless someone and let them know we care.
What a final blessing of the day to get this phone call. I pray I can represent other families and the children we advocate for and that I come across with grace and intelligence.
Tuesday, February 23, 2010
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